Boring Baby

The nurses tell us that we have such a boring baby all she does is just lay there and hardly moves when they mess with her. I'm thinking it's a good thing. Heather was up there all day today and Corey took Brooke up at night to see Ashley. Brooke did really well a little shy at first, but opened up later in the night. Everything is looking good. Her blood work is coming back good and her lungs are starting to hear better. She had a little problem with breathing today. She was breathing to fast, but they got that problem fixed and she's back to normal breathing. They have turned her oxygen level down to 35 she only has to get to 25 before the breathing tube comes out. It sounds like another day or two with the tube in. That's about that's new on Ashley's end. She just keeps us hopping :) Thanks for all your prayers

Update

Here is is an update on Ashley as of this morning. Not much has changed she is still in critical care and on the ventilator since she still can't breathe on her own yet. She will most likley be on the ventilator for a couple days yet until she can breathe on her own. They still have her under to keep her calm so at this point all she does is sleep. The doctors say that she is doing good. Once they take her off the ventilator then they will move us to another floor for a couple days. So it looks like we will be up here for a week or so yet if every goes good. Here is a few pictures. Thanks for your thoughts & Prayers.

Please Pray

Ashley was taken to Holland Hospital last night with RSV. They transferred her via Aero-Med to De Vos Hospital last night around 10:00. They had to put a breathing tube in since she was not breathing on her own. I talked to Corey this morning and she's going well. Her vital were the best this morning that they have been since she's been there. She's breathing about 50% on her own so that's a good thing. It sounds like we might be there for a week or so. I will keep everyone posted on how she's doing. Please pray: for Ashley that she can fight this off, Corey and Heather that they may have peace and for Brooke and Kenzie as they are being shipped from one place to another and wont be able to see Ashley. Thanks

Finally Some Answers

We went to the doctor this morning and got the results of the biopsy. Ashley has a condition called Incontinentia Pigmenti in other words a rash that changes texture and will go away over the next 2-3 months or so and then will turn into pigmentation. There are 4 main side affects that we have to look out for.

1- Dental Defects - sounds like nothing major she will just have to go to the dentist on a regally bases.
2- Eye Problems - Sounds like we just have to make sure her eyes track together. She will be going to an eye doctor when she's 6 months old.
3- Central Nervous Disorders - Sound like we will have to worry about epilepsy. She will be going to a brain doctor at a year to do a scan to make sure everything is normal.
4 - When Ashley gets older and wants to start a family they will have to decide if they want to take their chances of having a boy. She is a carrier now so it will be pasted on to her children.

The chances that she will have any of these side affects is 25%. We are so thankful that all these problems are fixable if she would come down with any of them. We were also told that Heather is a carrier of this genetic and that our girls would have 50/50 chance of getting it and Ashley was the only one. If we were to have a boy with any of our pregnancies it would be fatal. We are so blessed to have our three girls and that we didn't have to go through that. Thanks for all the thoughts and prayers during this time. Please pray that Ashley will not come down with any of the side affects.

Happy Birthday Brooke!!

Brooke turned 6 on Wednesday. Wow how time flies. We had a party for her last week with Grandma and Grandpa's and Aunt and Uncle's. Wednesday we did our own little party for her. She brought cupcakes to school for her Birthday treat. I think she had a great day.

ER Visit = An Overnight Stay

Ashley spent Sunday night at the ER with a terrible rash from head to toe. It looked like she was sun burned all over her body. Corey brought her in and they did a bunch of blood work. They pricked her little heel so many times. They couldn't figure out what it was so they wanted to keep her overnight and watch her and do more blood work on Monday. Corey stayed the night. I got a call in the morning that they ruled it was just a newborn rash, but hers was extreme they never seen it that bad. I went up to the hospital Monday morning and got to hold and feed her. They released her around 2:00 p.m. on Monday. I took her to the doctor this morning and it's clearing up, but it still looks bad. She weighed 5 pounds 8 ounces I still can't get over how tiny she is. Ashley has been through a lot for only being 5 days old. It's so nice to have the family all home again.

Welcome Ashley Joy De Vries

The De Vries family has added another little girl to the family. Poor Corey is so out numbered now, but enjoys all his girls! Ashley was born December 4 at 6:37 p.m. and weighed 5 pounds and 11 ounces and was 20 inches long. She decided to come 2 weeks early and big surprise to us. I was at the doctor that morning and he told me that nothing was really going on, but to all our surprise I was in the hospital at 3:00 that afternoon. She is healthy and happy and we are so blessed for that. Brooke and Kenzie love there sister. Brooke will be such a great big help around the house. I think Brooke and Ashley sat in the chair rocking for a half hour this afternoon. Kenzie well what can I say about her - she loves Ashley that is the only thing on her mind is baby and every time is makes a noise or moves she's right there. We have to work on the gentle part a little more. We want to say a big thank you to our parents for watching the girls and cleaning our house it was nice to come home to a clean house. We couldn't do it with out you guys - THANKS!! We are so blessed for everything in our lives.

Oh Christmas Tree

We went out and cut our Christmas tree Saturday with my family. The weather was great even though it would have been nice to have some snow. We set the tree up Sunday afternoon and it's our best tree we have ever had. The girls were so excited to decorate it. I tried to put white light on it this year, but got out numbered 3 to 1, so yes the colored lights are on the tree again this year. Kenzie likes taking the candy canes off the tree then carries them all over the house. I got all the Christmas presents under the tree what a great feeling to be done with my shopping and all wrapped.

Getting Ready

We are down to the wire with the new baby coming. Only 18 days left!! We got everything ready for the little one. We put the crib up and cleaned all the baby stuff and did a load of laundry. The girls loved helping out maybe a little to much. Now it's just a waiting game.